Past Events 2014
Stresa, Italy, October 30 - November 1, 2014, at 3rd Joint International NA & NBIA Symposium
FINCB, Organization of the 3rd Joint International Symposium on Neuroacanthocytosis and Neurodegeneration with Brain Iron Accumulation in Stresa, Italy with talks and poster presentations of further TIRCON partners (abstracts see here) and awarding of NBIA Alliance travel grants for postdoctoral fellows and early career clinical doctors (see video here)
Stockholm, June 12, 2014, at 18th International Congress of Parkinson's Disease and Movement Disorders
Susan Hayflick (OHSU), Talk on "Neurodegeneration with Brain Iron Accumulation Diseases: Presentation in Adolescence and Adulthood" at 18th International Congress of Parkinson's Disease and Movement Disorders organized by the International Parkinson and Movement Disorder Society (Video interview with Susan Hayflick during the congress)
Istanbul, June 2, 2014, at Joint Congress of European Neurology
Portland, May 15, 2014, at Pediatric Grand Rounds
Susan Hayflick (OHSU), Talk on "Neurodegeneration with brain iron accumulation: genes to pathways to therapeutics" at the Pediatric Grand Rounds in the Oregon Health & Science University
Berlin, May 8-10, 2014, at ECRD 2014
Hoffnungsbaum e.V. , NBIA Disorders Association, Poster presentation on "The international umbrella organization NBIA Alliance and its mutual empowerment with the EU-FP7-funded collaborative project TIRCON" at the ECRD 2014 – European Conference on Rare Diseases & Orphan Products
Hohenroda, Germany, May 1-4, 2014, at 7th NBIA Family Conference in Germany
Hoffnungsbaum e.V., Organization of the 7th NBIA Family Conference in Germany with talks of Caroline Biagosch (TUM-MED) on "News from NBIA diagnostics and TIRCON biobank", Boriana Büchner (LMU) on "The NBIA research project TIRCON: patient registry and trial" and Ivan Karin (LMU) on "Therapies for NBIA disorders"
New York, April 2, 2014, at Melvin Yahr Memorial Neurology Grand Rounds
Susan Hayflick (OHSU), Talk on "Neurodegeneration with brain iron accumulation: from genes to pathways to therapeutics" at the Melvin Yahr Memorial Neurology Grand Rounds in Mount Sinai Hospital School of Medicine
New York, April 1, 2014, at the Pediatric Neurology Grand Rounds
Susan Hayflick (OHSU), Talk on "Neurodegeneration with brain iron accumulation: from genes to pathways to therapeutics" at the Pediatric Neurology Grand Rounds in New York University School of Medicine
London, March 20-21, 2014, at the international meeting "Coenzyme A and its derivatives in cellular metabolism and disease"
Ody Sibon (UMCG), Organization of the biochemical society focused meeting "Coenzyme A and its derivatives in cellular metabolism and disease“ with talks of Susan Hayflick (OHSU) on “How defects in pantothenate metabolism cause neurodegeneration”, of Ody Sibon (UMCG) on “Manipulation Coenzyme A metabolism to prevent neurodegeneration” and of Valeria Tiranti (FINCB) on “Alteration of Coenzyme A biosynthetic pathway in Neurodegeneration with Brain Iron Association syndromes”
Napa, California, February 11, 2014, at Pacific Union College
Nancy Sweeters (CHRCO), Talk on the TIRCON clinical study and the role of the Research Nurse at Pacific Union College
Miami, February 4-6, 2014, at the SCOPE Summit
Patty Wood (NBIADA), Participation in a panel discussion on "Partnership with Patient Communities to Get from Data to Clinic (Patient Information, Registries, Trials)" at the Cambridge Healthtech Institute's SCOPE Summit
Berlin, January 30, 2014, at the ACHSE and vfa.bio meeting "The power of patients in research"
Angelika Klucken (HoBa), Talk on "Research and development of drugs - What do patients contribute?" at the meeting “The power of patients in research – Collaboration with academia and industry” organized by ACHSE e.V. and vfa.bio
Zürich, Swiss, January 16-17, 2014, at the 1st Austrian-Swiss Metabolic Meeting (ASMM)
Tobias Haack (TUM-MED), Talk on "Neurodegeneration with brain iron accumulation (NBIA)" within the session "New developments in neurometablic disorders" at the 1st Austrian-Swiss Metabolic Meeting (ASMM) on "Diagnostic and therapeutic challenges in Inborn Errors of Metabolism"
