Links
ClinicalTrials.gov: FORT study of Fosmetpantotenate (RE-024) in PKAN Patients
ClinicalTrials.gov: TIRCON study of Deferiprone in patients with PKAN and its results
Seventh Framework Programme (FP7)
Advocacy for Neuroacanthocytosis Patients
EMINA - European Multidisciplinary Initiative on Neuroacanthocytosis
EMINA-2 - Advancing the European Multidisciplinary Initiative on Neuroacanthocytosis