TIRCON is composed of 13 partner institutes from 8 different countries around the world. Each partner institute has specific duties in the one or more of the 8 work packages of TIRCON, shown below.
TIRCON's funding period: Nov 2011 - Oct 2015
NBIA patient registry platform
Participants needed for NBIA registry
Seventh review of patient's safety in the clinical trial by the DSMB
Orphan drug designation granted
NBIA Patient registry is progressing successfully
6th International Symposium on NBIA, April 7-8, 2017 in Stevenson, Washington, USA