You are here: Home

TIRCON - An EU-funded rare-disease project dedicated to NBIA

TIRCON (“Treat Iron-Related Childhood-Onset Neurodegeneration”) is a research consortium comprising 13 partners from 8 countries and funded by the EU under FP7. TIRCON’s concept is to bring together the existing outstanding, but scattered expertise in NBIA research and care throughout Europe and on the international level. The project aims to set-up a structured network to improve diagnosis and treatment of NBIA (Neurodegeneration with Brain Iron Accumulation). NBIA is a group of of rare, inherited movement disorders with PKAN being the most common. NBIA disorders usually begin in childhood, are relentlessly progressive and cause severe disability, eventually leading to a premature death.

 

 
Brain Iron Accumulation
TIRCON's Structure