Work Package 6

Title of Work Package: Ethics

Objectives: WP6 aims to assess, address and monitor the unique ethical challenges associated with the research in TIRCON. Specifically, challenges arising from research on rare disorders, lethal childhood disorders, and conditions that impair cognition of prospective study participants will be addressed. In addition, confidentiality, privacy, and ethical procedures that will be mandatory in the course of TIRCON will be defined. All questions related to ethical issues related to this project from participants will be addressed as well.


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