English

What is TIRCON?

TIRCON is a research project dedicated to a group of rare neurological disorders called Neurodegeneration with Brain Iron Accumulation (NBIA). TIRCON stands for "Treat Iron-Related Childhood-Onset Neurodegeneration". Thirteen project partners from eight countries are involved in TIRCON. The aim is an improvement of treatment and care for NBIA patients. TIRCON includes the following tasks:

For more information about TIRCON, click here.

 

How can patients participate?

NBIA patients could contribute to the project by…

For more information about the patient registry and the biobank, click here.

PKAN patients had the opportunity until March 2015 to…

The clinical trial is closed. The results are expected to become available in 2017.

 

Patient organization

 NBIA Disorders Association
Patricia Wood
2082 Monaco St; El Cajon, CA 92019-4235, USA
Phone number: 619 588-2315
Fax: 619 588-4093
info@NBIAdisorders.org
www.NBIAdisorders.org

In order to optimize our website for you and to be able to continuously improve it, we use cookies. By continuing to use the website, you agree to the use of cookies. Further information on cookies can be found in our privacy policy (Datenschutzerklärung).