Links

ClinicalTrials.gov: FORT study of Fosmetpantotenate (RE-024) in PKAN Patients

ClinicalTrials.gov: TIRCON study of Deferiprone in patients with PKAN and its results

Seventh Framework Programme (FP7)

NBIA Alliance

NBIA Disorders Association

Hoffnungsbaum e.V.

Advocacy for Neuroacanthocytosis Patients

EMINA - European Multidisciplinary Initiative on Neuroacanthocytosis

EMINA-2 - Advancing the European Multidisciplinary Initiative on Neuroacanthocytosis

NBIAcure

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