NBIA Alliance

The NBIA Alliance is the first informal international umbrella organization for NBIA lay advocacies, currently comprising 8 associations. Fostered by TIRCON, the NBIA Alliance was initiated on the occasion of the TIRCON kick-off meeting in January 2012.

Its main objectives are to increase awareness of NBIA in the health care community and the public, and to support cooperative research into NBIA Disorders.

 

Achievements

 

Members

Canada: NBIA Canada
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Website: www.nbiacanada.com
 
France: AIDNAI-Association International DNAI
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Website: www.aidnai.org
 
Germany: Hoffnungsbaum e.V.
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Website: www.hoffnungsbaum.de
 
Italy: AISNAF-Associazione Italiana Sindromi Neurodegenerative Da Accumulo Di Ferro
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Website: www.aisnaf.org
 
Netherlands: Stichting Ijzersterk
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Website: www.stichtingijzersterk.nl
 
Spain: ENACH Asociación
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Website: www.enach.org
 
Switzerland: NBIA Suisse
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USA: NBIA Disorders Association
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Website: www.NBIAdisorders.org
 

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